Despite significant improvements, compared to peer nations, Canada under-performs on a number of measures related to organ donation and transplantation (for example, rates of living and deceased donation). For better understanding of system challenges, to support evidence-informed decision-making, and drive improvements in access, efficiency, quality and outcomes across the continuum of care, a pan-Canadian data and performance reporting system has been identified as a high-priority initiative by the organ donation and transplantation community.
In collaboration with provincial, territorial and national agencies, this project aims to modernize pan-Canadian data management and performance reporting systems for organ donation and transplantation to improve consistency and quality of data from across the country, and expand the use of data for decision-making.
The project will contribute to:
Canada Health Infoway (Infoway) and the Canadian Institute of Health Information (CIHI) are the leads for this project.
Mark Nenadovic, Senior Director, Infoway
Greg Webster, Director, Acute and Ambulatory Care Information Services, CIHI
“With this project Health Canada has provided organ donation and transplantation communities with tremendous and transformative opportunities that will reap benefits for generations of Canadians.”
EXPECTED PROJECT COMPLETION IN 2024
The Organ Donation and Transplantation Collaborative is an initiative led by Health Canada with provinces and territories (except Québec), Canadian Blood Services, patients, families, clinicians and researchers. Funded by Health Canada, the project Implementation of a Pan-Canadian Data Management and Performance Reporting System contributes to the Collaborative’s vision to achieve organ donation and transplantation system improvements that result in better patient outcomes and an increase in the number and quality of successful transplantations. For more information, please consult the Organ Donation and Transplantation Collaborative (the Collaborative) website: https://tinyurl.com/ODTCollaborative.