For many patients with end-stage kidney disease, a kidney transplant from a living donor provides the best outcome in terms of longer life expectancy and better quality of life. However, access to living donor kidney transplant (LDKT) is dramatically lower among racialized groups in Canada compared to white patients. This issue is partly due to insufficient knowledge among patients and communities about the benefits of LDKT, cultural or religious concerns, and barriers to communication about health problems outside the immediate family. Potentially modifiable barriers include systemic bias and racism, and lack of trust by patients in the health care system.
There has also been an absence of thorough discussion about planning for and implementation of best practices to address inequities in Canada. While this project focuses on South Asian and African, Caribbean and Black Canadians, the project findings and tools may be able to be adapted for other at-risk groups marginalized by race or ethnicity.
This project aims to improve equitable access to LDKT in racialized groups in British Columbia and Ontario by implementing and evaluating culturally safe tools and clinical pathways.
The project will contribute to:
The project is led by Providence Healthcare in collaboration with the UHN Centre for Living Organ Donation.
Dr. Jagbir Gill, Associate Professor, UBC Division of Nephrology, St. Paul’s Hospital
Dr. Istvan Mucsi, Associate Professor, University of Toronto Kidney Transplant Program, UHN
“Change takes time, but we are channeling our passion and energy into something positive. We are planting the seeds so that eventually the system can be better for everyone.” Fadia Jerome-Smith, living donor kidney recipient for ACB communities
“In research and in healthcare, we need to have the difficult conversations about how we have historically contributed to the mistrust from racialized communities,” Lydia-Joi Marshall, Research Associate/ Community Liaison
EXPECTED PROJECT COMPLETION IN 2022
The Organ Donation and Transplantation Collaborative is an initiative led by Health Canada with provinces and territories (except Québec), Canadian Blood Services, patients, families, clinicians and researchers. Funded by Health Canada, the project Improving Access to Living Donor Kidney Transplantation (LDKT) in Communities Marginalized by Race and Ethnicity in Canada contributes to the Collaborative’s vision to achieve organ donation and transplantation system improvements that result in better patient outcomes and an increase in the number and quality of successful transplantations. For more information, please consult the Organ Donation and Transplantation Collaborative (the Collaborative) website: https://tinyurl.com/ODTCollaborative.