Topic: Social Science – Patient perspectives in Transfusion

Presented by

Dr. Kelly Holloway & Dr. Jennie Haw

PhD, Social Scientist, Canadian Blood Services

Guest: Biba Tinga

President of Sickle Cell Disease Association of Canada

Learning objectives

1. Summarize the role and value of social science in Transfusion Medicine Research
2. Introduce approaches to patient engagement and community-based participatory research in Transfusion Medicine Research
3. Discuss the relationship between research on donors and research on patients in the field of Transfusion Medicine
4. Detail two examples of qualitative research involving patients in the field of Transfusion Medicine

Relevant Preparatory Materials:

Holloway, K., Chauhan, D., Majid, U., Kelly, S., & Grundy, Q. (2024). Chaos, miracle, and coping: A narrative analysis of immunoglobulin recipients’ lived experiences of illness, diagnosis and treatment. SSM-Qualitative Research in Health, 6, 100467.

Majid, U., Grundy, Q., Kelly, S., & Holloway, K. (2026). Engaging patients in blood systems: A qualitative study on immune globulin recipient perspectives. Social Science & Medicine, 118997.

Haw J, Walrond J, Jayachandran J, Dordunoo D, Eche-Ameh H, Muwhen U, et al. Sickle cell disease and the need for blood: Barriers to donation for African, Caribbean, and Black young adults in Canada. Transfusion. 2023;63(7):1324–32. https://doi.org/10.1111/trf.17396

Haw J, Senga J, Dordunoo D, Tinga B. Systemic barriers to donation for African, Caribbean and Black communities: A qualitative key informant study. Transfusion Medicine. 2026;1‐9. doi:10.1111/tme.70065.

Note: The session is a self-approved group learning activity (Section 1) as defined by the Maintenance of Certification program of The Royal College of Physicians and Surgeons of Canada.

Registration

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Appraisal

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To be added to the distribution list for the LearnTransfusion series, send an email to learn.transfusion@blood.ca  with “Weekly Transfusion Medicine Seminars” in the subject line. Include your name and complete e-mail address in the body of the e-mail and confirm that you would like to be added to the distribution list for the LearnTransfusion series. You will then receive weekly email notifications of upcoming series events with details on how to join the webinars (e.g.,  link to register for the webinar).

The LearnTransfusion series is the seminar component of the Areas of Focused Competency (AFC)-Diploma Program in Transfusion Medicine. The series, organized by Canadian Blood Services, is also open to all practitioners in the field of Transfusion Medicine. Through a series of regular webinars, trainees and practitioners are exposed to various scientific, technical and clinical aspects of transfusion medicine.